Congress has passed legislation creating a national registry of people with ALS:
The legislation would establish the first ever national patient registry of people with Lou Gehrig’s Disease, or amyotrophic lateral sclerosis, to be administered by the Centers for Disease Control and Prevention. The registry would collect information leading to the cause, treatment and cure of the deadly neurological disease that took the life of baseball legend Lou Gehrig in 1941.
In tangentially-related news, Saturday's remembrance will be at 11 at the Kenilworth Union Church.